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UID:pretalx-citizen-science-communication-trust-2026-SBQAMU@ifkw.rz.tu-bs.d
 e
DTSTART;TZID=CET:20261005T141500
DTEND;TZID=CET:20261005T143000
DESCRIPTION:Authors:\nMarina Presas1\, Antoni Caimari 1\, Joan Serrano1\, S
 ilvia Orte1\, Alejandro Heres1\, Sílvia Chafino1\, Dorota Komar1\, Cedric
  Moulin2\, Leonie Miserez2\, Annick Bogaerts2\, Roland Devlieger2 \, Carme
 n Freire3\, Inés Velasco4\, Marta Ocaña5\, Paula Sol Ventura5\, Alicja B
 aska6\, Michał Ciebiera7\, Lisa Moussaoui8\, Maryse Ledent9\, on behalf o
 f the HYPIEND core-investigators\n\n1 Department of Biotechnology\, Eureca
 t\, Centre Tecnològic de Catalunya\, Biotechnology Area\, Reus\, Spain\n2
  Department of Development and Regeneration\, KU Leuven\, Leuven\, Belgium
 \n3 Department of Legal Medicine\, Toxicology and Physical Anthropology\, 
 University of Granada (UGR)\, Granada\, Spain\n4 Department of Gynaecology
  and Obstetrics\, Germans Trias i Pujol Research Institute (IGTP)\, Barcel
 ona\, Spain\n5 Department of Paediatrics\, Germans Trias i Pujol Research 
 Institute (IGTP)\, Barcelona\, Spain\n6 School of Public Health\, Centre o
 f Postgraduate Medical Education (CMKP)\, Warsaw\, Poland \n7 Department o
 f Obstetrics and Gynaecology\, Centre of  Postgraduate Medical Education (
 CMKP)\, Warsaw\, Poland\n8 Health Psychology\, University of Geneva Facult
 y of Psychology and Education\, Geneva\, Geneva\, 1205\, Switzerland\n9 Ri
 sk and health impact assessment\, Sciensano\, Brussels\, Belgium\n\nEndocr
 ine-Disrupting Chemicals (EDCs) represent a complex and largely invisible 
 environmental health risk\, increasingly associated with adverse developme
 ntal and metabolic outcomes. Communicating these risks to the public poses
  significant challenges due to scientific uncertainty\, low awareness\, an
 d the difficulty of translating evidence into actionable behaviours. In th
 is context\, fostering trust in science is essential to enable meaningful 
 citizen engagement and behavioural change.\n\nThis contribution presents H
 YPIEND\, a European multicentre intervention as a practice-based case stud
 y at the intersection of citizen engagement\, public communication\, and t
 rust-building. The project involves approximately 325 pregnant women and t
 heir infants from Poland\, Spain and Belgium in the perinatal study\, as w
 ell as a complementary school-based intervention reaching 550 children age
 d 6–8 years\, their families\, and educational communities\, across 38 s
 chools in Spain and Belgium.\n\nWhile primarily designed as a health inter
 vention\, HYPIEND integrates a comprehensive communication and engagement 
 strategy targeting both participants and the broader public. This includes
  educational workshops for pregnant women\, families and schools\, communi
 cation materials (e.g.\, infographics\, brochures and guidelines)\, social
  media campaigns and ongoing personalised follow-up. Public-facing communi
 cation activities complement these actions\, raising awareness of EDCs and
  empowering citizens beyond the direct study participants. These elements 
 have been designed to translate complex scientific evidence into accessibl
 e\, actionable knowledge\, while supporting sustained engagement over time
 .\n\nA central component of this strategy is a digital health platform\, d
 eveloped by Eurecat\, designed to support behaviour change through persona
 lized and interactive communication. The platform\, available as both a mo
 bile application for pregnant women and families and a web-based tool for 
 researchers\, uses a gamified system that recommends “missions” based 
 on user choices and habits\, alongside motivational messages explaining th
 e importance of behavioural change and reinforcement strategies to sustain
  habits over time. It provides personalised advice on environmental health
  and EDC exposure prevention\, integrating educational and interactive con
 tent. \n\nThe intervention is grounded in a psycho-social framework called
  Health Action Process Approach (HAPA)(see ref. 1) and moves beyond inform
 ation provision towards enabling agency\, participation\, sustained engage
 ment\, and translating complex scientific evidence into practical\, everyd
 ay decisions (see ref. 2). From a citizen science perspective\, HYPIEND ca
 n be understood as a participatory model in which citizens actively contri
 bute through behavioural changes\, data generation\, and continuous intera
 ction with the research process. In the prepubertal study\, the inclusion 
 of school staff\, pupils and families further strengthen the community-bas
 ed nature of this participation.\n\nThis practical insight presents the st
 rategy followed and aims to discuss key challenges and lessons learned der
 ived from the design and implementation of the communication strategy\, fo
 cusing on: (1) how different communication formats (digital tools\, face-t
 o-face interactions\, and visual materials) support understanding and enga
 gement\; (2) the role science communication for building trust\; and (3) c
 hallenges related to communicating uncertainty and invisible risks.\n\nThe
  HYPIEND project\, coordinated by Eurecat\, has received funding from the 
 Horizon Europe programme under grant agreement No. 101137440. Funded by th
 e European Union.
DTSTAMP:20260721T202343Z
LOCATION:Tagungsraum
SUMMARY:Communicating Invisible Risks: Building Trust through Citizen Engag
 ement in the HYPIEND Intervention on Endocrine Disruptors - Marina Presas 
 Quintana
URL:https://ifkw.rz.tu-bs.de/citizen-science-communication-trust-2026/talk/
 SBQAMU/
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